Part of parenting is censoring the world for your child’s developing brain.

I see gizmodo I downvote. It’s a simple life.

$$$$

Two of those have been remade, are we talking only the originals?

I actually found out she had it by watching that show. I was looking at her thinking, “she’s got the moon face.” Something that happens to us especially when we’re forced to take corticosteroids during a bad flair. And then I looked it up and was right. Lady Gaga also has lupus and is obviously still an international superstar. So I think OP will be fine as long as they don’t do an extremely rough physical job or work outside.

Only effective if this doesn’t placate the regulators and Congress and something is actually done.

This has all happened before and it will all happen again. This is what it looks like when a social media company tries to head off an incoming regulatory push.

Trying to avoid regulations of course.

Just don’t. Use the time to catch up on your book reading.

Lupus Nephritis is not as common. Thankfully we don’t all have to worry about our kidneys. Glad your friend is doing well now.

I’ve been on hydroxochloroquine for over a decade. Other than having to increase the frequency of opthalmologist appointments the longer I’m on it, it’s done nothing but improve my life.

As someone with Lupus I can echo this. Now that you know and can get tailored treatment it’s the start of getting better not worse.

First things first, treatment is way way better than when your grandmother was diagnosed. We have lots of off label meds and even now have an on label lupus medication. I was diagnosed at just before my 22nd birthday, I’m 38 now and I’m doing great. You can get through this. It gets better.

One thing you are going to have to learn is your new limits. Chances are you’ve already experienced what it’s like to exceed them, but now you know why. Stay out of the sun, take vitamin D, when your body demands rest, listen. Get a consistent sleep schedule and stick to it. If you are not already off alcohol it’s worth considering but not necessary (depending on your meds.) Cannabis is also worth considering, but again between you and your doctor(s).

Listen to your doctor(s). Make sure you keep up with your Rheumatologist and your GP. You may have to add in an opthalmologist depending on your meds as well (don’t worry about that, eye complications are rare). It may take time to find the medications that work for you, be patient. It’s probably not going to be just one medication, most people do best on combinations. Be sure to get off Prednisone as soon as you can tolerate, it’s only meant to be temporary and it can have long lasting effects. Find a local support group, the lupus society has them all over. https://www.lupus.org/

Feel free to DM me or add me as a friend. This isn’t the end of your life, but it is the start of a big change.

This is all less medical advice than it is lessons I learned the hard way.

Yes, there is. Even Xitter quickly changed their LLM to point to a government website whenever voting questions were asked so they have no liability.

I have tried them all, it’s Navidrome. It’s actually less resources for me to run 4 instances of Navidrome for my different users than it is to use any of the other servers that allow for separate user libraries. Just make sure you alter the folder scan interval, it’s stupidly frequent by default.

The OLPC reborn. You can probably by one for a child in a developing nation for $1 while purchasing one for $300 for yourself.

I loled, but this is distracting from the purpose of this community so I have to downvote it.

Tales of The Black Freighter in Watchmen. Comic in a comic.

Now is the perfect time to raise alarms loudly and publicly so they understand how upset people will be before investing.

The way you sneeze is learned, so just make a conscious effort to change.

Also cover with your arm so you’re sneezing into your elbow.